About the Radboudumc center of expertiseRadboudumc’s center of expertise in Congenital Hernia Diafragmatica (CHD) and Neonatal Pulmonary Hypertension (NPH) provides care to children with this CHD congenital defect and newborns with severe pulmonary hypertension due to meconium aspiration syndrome, sepsis/pneumonia or without a known cause.
As part of the treatment for newborns, ECMO (Extracorporeal Membrane Oxygenation, a kind of 'artificial lung' treatment) may be required. For newborns and children this takes place at the Radboudumc Amalia Children's Hospital or the Sophia Children's hospital in Rotterdam.
The Extracorporeal Life Support Organization (ELSO) has awarded us the 'Excellence in extracorporeal life support' Award three times.
Radboudumc’s center of expertise in Congenital Hernia Diafragmatica and Neonatal Pulmonary Hypertension is acknowledged by the Ministry of Health, Welfare and Sport.
Our expertiseOur expertise focuses on the care of children with the congenital condition Congenital Hernia Diafragmatica and also on newborns with a severe pulmonary hypertension (high blood pressure in the blood vessels of the lungs) for which ECMO treatment (Extracorporeal Membrane Oxygenation, a kind of 'artificial lung' treatment) is required.
In addition to the treatment of newborns, we have an aftercare program (outpatient follow-up) in collaboration with various fields of expertise.
For patientsCHD during pregnancy
Most patients are referred before birth, because it was established during the '20 week ultrasound' in pregnancy that the child has a congenital diaphragmatic hernia.
Newborns with respiratory problems
Other children are often referred shortly after birth with severe respiratory problems requiring ECMO treatment.
Children with pulmonary diseases
There may also be older children who need ECMO treatment because of a pulmonary disease.
Prenatal Diagnostics and Therapy +31 (0)24 361 77 00 Pediatrics +31 (0)24 361 44 30 Pediatric surgery +31 (0)24 361 97 61
Making an appointment
Before birthIf congenital hernia diaphragmatic (CHD) is diagnosed prior to birth, an outpatient clinic appointment will be made with the gynecologist, pediatrician and pediatrician. During this appointment, you will receive information about the abnormality, any additional findings, the prognosis and treatment options.
Further checks are often carried out alternately at your own gynecologist and at our center.
ChildbirthWhen this abnormality is detected during pregnancy, childbirth must take place at our hospital or at the Sophia Children's Hospital. Both centers provide ECMO treatment and specialize in the care of children with CHD. Usually the birth is then initiated at about 38 weeks.
Referral from intensive careFor the other children, referral usually takes place from another center that provides intensive care for newborns (NICU) or older children (PICU).
AftercareFor all children with CHD or who have had ECMO treatment, there is an aftercare program to treat any problems and to continue to track the development of the children (physical, mental, speech and language and motor skills).
For this purpose, there is also a joint national research program with other centers of the Sophia Children’s Hospital in Rotterdam.
Participating in researchThere are still many unanswered questions regarding CHD and children who have had ECMO treatment:
- What causes it?
- What is the best treatment?
- What is the progress during later of development?
EducationThe departments involved in the center of expertise provide education for, among others:
- medical students
- students in biomedical sciences
- doctors (in training)
ResearchThe research into children with CHD who have received ECMO treatment is done in close collaboration with the Sophia Children's Hospital in Rotterdam. In addition, there is the European consortium EURO-CDH.
There is also a separate line of research into possible solutions to close the defect (hole) in the diaphragm of children with CHD.