Prenatal Diagnostics and Therapy +31 (0)24 361 77 00 Pediatrics +31 (0)24 361 44 30 Pediatric surgery +31 (0)24 361 97 61
Making an appointment
Before birthIf congenital hernia diaphragmatic (CHD) is diagnosed prior to birth, an outpatient clinic appointment will be made with the gynecologist, pediatrician and pediatrician. During this appointment, you will receive information about the abnormality, any additional findings, the prognosis and treatment options.
Further checks are often carried out alternately at your own gynecologist and at our center.
ChildbirthWhen this abnormality is detected during pregnancy, childbirth must take place at our hospital or at the Sophia Children's Hospital. Both centers provide ECMO treatment and specialize in the care of children with CHD. Usually the birth is then initiated at about 38 weeks.
Referral from intensive careFor the other children, referral usually takes place from another center that provides intensive care for newborns (NICU) or older children (PICU).
AftercareFor all children with CHD or who have had ECMO treatment, there is an aftercare program to treat any problems and to continue to track the development of the children (physical, mental, speech and language and motor skills).
For this purpose, there is also a joint national research program with other centers of the Sophia Children’s Hospital in Rotterdam.
Participating in researchThere are still many unanswered questions regarding CHD and children who have had ECMO treatment:
- What causes it?
- What is the best treatment?
- What is the progress during later of development?
EducationThe departments involved in the center of expertise provide education for, among others:
- medical students
- students in biomedical sciences
- doctors (in training)
ResearchThe research into children with CHD who have received ECMO treatment is done in close collaboration with the Sophia Children's Hospital in Rotterdam. In addition, there is the European consortium EURO-CDH.
There is also a separate line of research into possible solutions to close the defect (hole) in the diaphragm of children with CHD.