About Iron metabolism diseases

Radboudumc’s center of expertise in iron metabolic diseases specializes in the care of patients with iron metabolic diseases, such as hemochromatosis and anemia.

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About Iron metabolism diseases

Your body needs iron, especially for the production and proper functioning of red blood cells. We get iron through our diet, and in healthy people there is a balance between the absorption of iron and iron loss. If you have hemochromatosis, this balance is disturbed and your body absorbs more iron than it needs. This build-up of iron can lead to irreparable damage to the liver, and in the long run to problems in your pancreas, joints, skin, heart, and thyroid. Hemochromatosis can be hereditary and occur from birth (primary), but can also be a result of another disease (secondary). Iron deficiency causes anemia. You will then have too few red blood cells (or they will work incorrectly). Anemia may make you feel tired, dizzy, faint or short of breath.

Expertise

Radboudumc’s center of expertise in iron metabolic diseases specializes in the care of both child and adult patients with iron metabolic diseases. We offer top care during diagnosis and treatment, and we are also a leader in research. We apply our research findings into creating new diagnostics and treatment processes.
 
The center of expertise in iron metabolic diseases is acknowledged as a center of expertise by the Ministry of Health, Welfare and Sport.

Contact

(024) 361 89 57
contact

Making an appointment

If your general practitioner or specialist sends us a referral letter, you will receive a written notification within seven days. Please bring your insurance card, a form of identification and medication overview with you when you come for your first visit.

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Making an appointment

If your general practitioner or specialist sends us a referral letter, you will receive a written notification within seven days. Please bring your insurance card, a form of identification and medication overview with you when you come for your first visit. If, in addition to your doctor's referral letter, you have received any additional information, we ask you to send it to us. You can send your referral by post, email or fax. During the visit to the outpatients' clinic, the attending physician collects information during an extensive interview (anamnesis) and a physical examination.

Conversation tips

A few tips that will help prepare you for the first interview with your treating physician:
  • Write down your symptoms point by point.
  • Write down your questions and note down the answers the doctor gives you during the visit.
  • If you do not understand something, please say so and ask for an explanation.
  • Come to the appointment with a person you are close to.
  • If you still have questions after the interview, make a new appointment.
 

Participating in research

Sometimes patients can participate in research. Your doctor will be able to inform you about this. Of course, participation is voluntary.

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Participating in research

Radboudumc's center of expertise in iron metabolic diseases is a leader in research in this field. Our research enables us to further improve the care we offer. We deal with issues such as:
  • Development of new forms of diagnostics
  • Iron treatment and intestinal bacteria
  • Iron metabolism of the kidney
  • Optimization of diagnoses and treatment of iron metabolism disorders
  • Change in iron metabolism after blood donation
 
Sometimes patients can participate in research. Your doctor will be able to inform you about this. Of course, participation is voluntary.

Education

The center's staff provides education for students and professionals in the Netherlands and abroad. For example, third-year Bachelor's students in Medicine can choose to take a full-time program 'Iron metabolism disorders: from bench to bedside' for a month.