Education regarding sarcomas

Radboudumc’s center of expertise in sarcomas provides education for students of Medicine, the nursing program, and of other programs. We also offer medical specialists (trainee) the opportunity to do an internship. It is also possible for students to carry out academic research within our center of expertise.
 
Our center of expertise also contributes to the further training and education of medical specialists (trainee), general practitioners, nurse practitioners and (oncology) nurses through Q and A evenings and refresher training symposia.

About center of expertise Sarcomas

Sarcomas are malignant tumors originating from bone or soft tissue. A sarcoma is diagnosed in approximately 1,000 people in the Netherlands every year, making them one of the rare tumors. More than 30% of all new patients are treated at Radboudumc's center of expertise in sarcomas.

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About center of expertise Sarcomas

Sarcomas are rare, malignant tumors in bones and soft tissue. They represent only 1.5% of all types of cancer. In the Netherlands, there are approximately 200 patients a year with malignant bone tumors and 700 patients with malignant tumors in soft tissue. Almost 20% occurs in patients younger than 18 years of age.

Experience

Every year, approximately 450 patients are treated by various specialists at Radboudumc's center of expertise in sarcomas. As a result, the treatment team has a great deal of experience with these rare tumors, and we have all the facilities to provide timely, effective and personalized care for this group of patients. The departments involved have been fulfilling this role for more than thirty years, with the support of Radboudumc's Centre for Oncology.
 
The Ministry of Health, Welfare and Sport has acknowledged our center of expertise as the center of expertise for sarcomas.

Our expertise

The treatment of sarcomas is very diverse and complex. In-depth operations are often required. In most cases, several care professionals are involved in the treatment of a patient. They treat a relatively large number of patients with sarcoma. All patients are discussed in a multidisciplinary consultation before and after treatment. As a result, all care professionals involved with the center of expertise have extensive knowledge and experience in the field:

  • diagnostics, treatment, and follow-up
  • age-specific care, including care for children and AYAs (Adolescents & Young Adults 18-35)
  • practical and psychological support
  • academic research
  • education

Appointment and first visit

Your general practitioner or attending specialist will refer you to our center of expertise. We will send an information package to your home.

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Appointment and first visit

Your general practitioner or attending specialist will refer you to our center of expertise. An information package will then be sent to your home about:
  • the outpatient clinic
  • date and time of your appointment
 
The specialist will look closely at the available information. To keep the burden on patients to a minimum, we will ask you to travel to Radboudumc as little as possible. We try to combine your appointments with the specialist with other appointments.

Operation

If the specialist expects surgery is needed, we will also make an appointment at the outpatient anesthesia clinic.

Additional examinations

Sometimes additional examinations are required, such as an X-ray, scan or blood test. An informative consultation with a nurse may also take place.

Your appointment

If your appointment with the specialist is combined with other appointments, your hospital visit may take longer. It is advisable to take this into account beforehand. It is also good to bring someone with you because you often get a lot of information.
The treatment is often multidisciplinary, and therefore a consultation may be required before we can thoroughly discuss the treatment plan with you.

What to bring to your first visit

Insurance papers
Every resident of the Netherlands is obliged to take out health insurance. The basic package reimburses the costs. However, keep in mind, you will have to pay your deductible.
Form of identification
Hospitals are subject to an identification requirement. You can identify yourself using a legal form of identification like passport, Dutch driving license or identity card.

Where to check in?

When visiting Radboudumc for the first time, please register at the central registration desk in the main entrance hall. Here, your personal information is checked and recorded in the hospital registration system.
The invitation for your outpatient visit will state the outpatient clinic you are to visit. In the hospital, follow the route number as described in the invitation.

Referrals

For referrals, please send us the referral letter with CD with relevant studies and reports and any PA report.

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Referrals

For referrals, please send us the referral letter with CD with relevant studies and reports and any PA report. Based on this, we can assess when we can see the patient. Sarcoma treatment is often multidisciplinary. You will then choose the specialism that is expected to have the most significant impact.

Information for referrers

  • Information can be sent to prof. dr. H.W.B. Schreuder, orthopedic surgeon, mw. dr. I.C.M. van der Geest, orthopedic surgeon or drs. E.F. Dierselhuis, orthopedic surgeon.

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    Referral Orthopedics

    Information can be sent to prof. dr. H.W.B. Schreuder, orthopedic surgeon, mw. dr. I.C.M. van der Geest, orthopedic surgeon or drs. E.F. Dierselhuis, orthopedic surgeon.

    Staff secretary
    Radboudumc
    Afdeling Orthopedie
    Huispost 611
    Postbus 9101, 6500 HB Nijmegen
    T: (024) 361 39 18

    Outpatient clinic
    T: (024) 361 39 18

    Consultation number general practitioners

    Office hours: (024) 361 39 18
    Out of office hours: (024) 361 44 90

    Fax secretary
    F: (024) 366 82 09

    E-mail: secretariaatstaf.orthop@radboudumc.nl
    Website: Afdeling Orthopedie

  • Referral Clinical Sciences

    Information can be sent to prof. dr. J.H.W. de Wilt, surgeon, dr. J.J. Bonenkamp, surgeon and dr. B.R. Klarenbeek, surgeon.

    Staff secretary
    Radboudumc
    Afdeling Heelkunde
    Huispost 618
    Postbus 9101, 6500 HB Nijmegen
    T: (024) 361 73 65

    Outpatient clinic
    T: (024) 361 38 08

    Consultation number general practitioners

    Office hours: (024) 361 38 07
    Out of office hours: (024) 361 34 38 (verpleegafdeling heelkunde)

    Fax secretary
    (024) 363 51 15

    E-mail:  Heelkundecasemanagers@umcn.nl
    Website: Afdeling Heelkunde


  • Referral Medical Oncology

    Information can be sent to mw. drs. S.E.J. Kaal, mw. dr. I.M.E Desar, or prof. dr. ir. J.J.M. van der Hoeven.

    Staff secretary
    Afdeling Medische Oncologie
    Huispost 452
    Postbus 9101, 6500 HB Nijmegen
    (024) 361 88 00

    Outpatient clinic
    (024) 361 88 00

    Consultation number general practitioners

    Available 24/7: (024) 361 88 00

    Fax secretary
    F: (024) 363 51 42

    E-mail: secretariaat.onco@radboudumc.nl
    Website: Afdeling Oncologie


  • Referral Childhood Oncology

    Information can be sent to mw. dr. M.M. Hagleitner or dr. J.K. Anninga.

    Staff secretary
    Radboudumc
    Afdeling Kinderhemato-oncologie
    Huispost 804
    Postbus 9101, 6500 HB Nijmegen
    T: (024) 361 44 30

    Outpatient clinic
    T: (024) 361 44 15

    Consultation number general practitioners  

    T: (024) 361 44 30

    Fax secretary
    F: (024) 361 64 28

    E-mail: secretariaat.kg@radboudumc.nl


  • Referral Neurosurgery

    Information can be sent to prof. dr. R.H.M.A. Bartels, neurosurgeon.

    Staff secretary
    Afdeling Neurochirurgie
    Huispost 633
    Postbus 9101, 6500 HB Nijmegen
    (024) 361 66 04

    Outpatient clinic
    (024) 361 66 04

    Consultation number general practitioners

    T: (024) 361 66 04

    Fax secretary
    F: (024)-3635117

    Website: Afdeling Neurochirurgie

  • Referral Radiotherapy

    Staff secretary
    Afdeling Radiotherapie
    Huispost 874
    Postbus 9101, 6500 HB Nijmegen
    T: (024) 361 45 15

    Outpatient clinic
    T: (024) 361 45 05

    Consultation number general practitioners

    Office hours: (024) 361 45 05
    Out of office hours (024) 361 1111

    Fax secretary
    (024) 363 51 27

    E-mail
    Onco-werkgroep@rther.umcn.nl voor aanmelding werkgroep sarcomen
    PostbusStafSecretariaat@rther.umcn.nl voor verwijzing

    Website: Afdeling Radiotherapie


Multidisciplinary patient consultation

At Radboudumc’s center of expertise in sarcomas, all patients are discussed in a multidisciplinary patient consultation, the tumor working group sarcomas.

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Multidisciplinary patient consultation

At Radboudumc’s center of expertise in sarcomas, all patients are discussed in a multidisciplinary patient consultation, the tumor working group sarcomas.
 
All the specialists concerned are present at these weekly consultations. There is always a surgeon, an orthopedic surgeon, an internist oncologist, a radiotherapist, a pathologist, a radiologist, and a nuclear physician present. We then discuss all the examinations that were carried out and determine the best possible treatment.

Relevant disorders


Education regarding sarcomas

Radboudumc’s center of expertise in sarcomas provides education for students of Medicine, the nursing program, and of other programs.

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Research


Participating in research

The various departments involved in this center of expertise conduct scientific research. As a patient, you may be asked to participate.

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Participating in research

The various departments involved in this center of expertise conduct scientific research. As a patient, you may be asked to participate. You can only participate in research with written consent. Without your consent, we will not conduct any research. Every research project within our departments has been approved by CMO.
 

Research at Radboudumc

Researchers at Radboudumc work on various research projects.

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Research at Radboudumc

Research at Radboudumc:
  • Floor Verspoor (Orthopaedics): synovitis villonodularis pigmentosa, PhD track
  • Addy vd Luijtgaarden (Medical Oncology): bone sarcomas, PhD trajectory
  • Marije Weidema (Medical Oncology): collision atoms, angiosarcomas, PhD trajectory
  • Ronald Tielen (Medical Oncology & Physics): GIST
  • Simône Langenberg and José Custers (Medical Oncology): psychosocial research, including GIST, PhD track.
  • Myrella Vlenterie(Medical Oncology): synoviosarcoma and angiogenesis
  • Suzanne Kaal (Medical Oncology): Ewingsarcoma and care for AYAs, PhD track.
  • Hanneke Vos (Childhood Oncology)
  • Nico Verdonschot/Ingrid van der Geest (Orthopaedics): 2MoreCare, predicting functional outcomes after tumor section
  • DOTS (Dutch Orthopedic Tumor Society): KWF subsidy for research on pathological fractures
  • Vicky Soomers (Medical Oncology): the diagnostic process for patients with a sarcoma