- 24 hours a week
- Until 1 March 2022
- Date of publication: 9 August 2019
- Deadline: 6 September 2019
- Scale 10/11: max € 72934 gross per year at full employment (incl. vacation bonus and end of year payments)
- First interview scheduled: 11 September 2019
Job descriptionApproximately 27–36 million patients in Europe have one of the ~ 5.000–8.000 known rare diseases. These patients often do not receive the care they need or they have a substantial delay from diagnosis to treatment. In March 2017, twenty-four European Reference Networks (ERNs) were launched with the aim to improve the care for these patients through cross border healthcare, in a way that the medical knowledge and expertise travels across the borders, rather than the patients. It is expected that through the ERNs, European patients with a rare disease get access to expert care more often and more quickly, and that research and guideline development will be accelerated resulting in improved diagnostics and therapies.
The ERN on Genetic Tumour Risk Syndromes (ERN GENTURIS) aims to improve the identification, genetic diagnostics, prevention of cancer, and treatment of European patients with a genetic predisposition for cancer. ERN GENTURIS is coordinated by Prof. Nicoline Hoogerbrugge, Genetics department Radboudumc. ERN GENTURIS currently has 23 Member health care providers (HCPs) from 12 EU Member States and will expand in the near future.
The ERN GENTURIS Coordination team is looking for an additional project manager with a background in Biomedical sciences or medicine, who has a special interest in development of clinical guidelines for genturis, assessment of clinical outcomes and active dissemination of ERN GENTURIS products and results to a broad public.
The project manager will work under the supervision of the ERN Coordinator and in close daily cooperation with the other ERN Project Manager. In addition, he/she will interact with other personnel recruited for specific ERN GENTURIS tasks and projects, the staff and administration of the coordinating HCP, other ERN GENTURIS HCPs and affiliated partners, patient groups and rare disease alliances, national rare disease networks, and other ERNs and EU agencies.
Tasks and responsibilities
- Coordinate and support ERN GENTURIS in the development of network guidelines and related documents for identified syndromes.
- Keep track of all network activity by the HCPs and patient representatives in order to collect and analyse monitoring data and aid periodic and annual reporting.
- Support the National Coordinators within ERN GENTURIS in setting up National Networks and disseminating all information related to ERN GENTURIS.
- Manage patient engagement and communication actions in close collaboration with the Task Force on Communication and the patient representatives.
- Help organize and attend meetings of ERN GENTURIS.
- Master’s degree or PhD in Biomedical sciences or Medicine.
- Strong interest in the field of rare diseases.
- Strong interest in oncology and genetics.
- Strong coordination and management skills.
- Knowledge of and experience with clinical guideline development processes.
- Knowledge of and experience with clinical outcome assessment.
- Fluent in written and spoken English.
- Experience in creating dissemination products (newsletters, brochures, flyers, posters, etc.).
- Experience in organizing meetings or conferences.
OrganizationProf. Nicoline Hoogerbrugge is the coordinator of ERN GENTURIS. She is chair of the multidisciplinary expert center in Hereditary Cancer of the Radboud University Medical Center and works in the department of Genetics. The department of Genetics treats and investigates hereditary diseases of patients and their families. The department has more than 400 employees and consists of 3 divisions that work very closely together: Clinical Genetics (genetic counseling), Genome diagnostics and Genome research.
Radboudumc strives to be a leading developer of sustainable, innovative and affordable healthcare to improve the health and wellbeing of people and society in the Netherlands and beyond. This is the core of our mission: To have a significant impact on healthcare. To get a better picture of what this entails, check out our strategy.
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Employment conditionsThe gross monthly salary, depending on work experience and education, will be scale 10 (max. € 4.481) or scale 11 (max. € 5.226) based on a full-time working week (excl. vacation bonus and 8,3% end of year payments).
Upon commencement of employment we require a certificate of conduct (Verklaring Omtrent het Gedrag, VOG) and there will be, depending on the type of job, a screening based on the provided cv. Radboud university medical center’s HR Department will apply for this certificate on your behalf.
Read more about the Radboudumc employment conditions and what our International Office can do for you when moving to the Netherlands.
Comments and contact informationAll additional information about the vacancy can be obtained from Dr. Nicoline Geverink, project manager ERN GENTURIS, Nicoline.Geverink@radboudumc.nl or via +31 (0)24 361 96 18. Use the Apply button to submit your application.
Please apply before September 6, 2019.
Recruitment agencies are asked not to respond to this job posting.
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