Research project for young people with dementia

28 May 2019

PRECODE: a new research project into timely diagnosis and help for young people with dementia.

This May, the PRECODE project started; a national study aimed at making a timely diagnosis and appropriate help possible for young people with dementia. The Department of Primary and Community Care is also involved in this project. PhD candidate Dennis van de Veen: "Dementia at a young age has a huge impact on the person and his or her environment. The available care for young people with dementia is often limited, which means they often have to make use of facilities for the elderly. We do not know how often and which forms of dementia occur at a young age. Partly for this reason, making a timely and correct diagnosis currently takes nearly twice as long with younger people with dementia than with older people – including all its consequences for the person and his or her family. It is therefore essential to recognize dementia in young people as soon as possible".
In this project we investigate how many people with dementia at a young age there are in the Netherlands, what the signals are for, for example, general practitioners whose practices are visited by patients and how the access to care proceeds after diagnosis. PRECODE project is a collaboration between the Alzheimer centers of Amsterdam, Rotterdam, Maastricht and Nijmegen, Nivel and Alzheimer Netherlands and runs until 2022.

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