The EJP RD brings over 130 institutions (including all 24 ERNs) from 35 countries: 26 EU Member States, 7 associated, UK & Canada. The aim is to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation on rare diseases (RD) research by improving its integration and implementing efficient financial models to support it.
Radboudumc is a full partner of EJP RD project and thus ALL researchers and stakeholders belonging to it can profit from the proposed program and join the meeting.
This year the GA program is going to be very rich and tailored to the specific interests of RD community.
The participants will be joining several workshops focused on:
- improving the understanding of ongoing EJP RD funding mechanisms to increase quality of their applications
- strengthening the capacity building to develop their new findings towards clinical settings
- training them in the use of systems to diagnose difficult RD cases with exome/genome data
- introducing novel and innovative methodologies applied to RD clinical trials
- explaining EJP RD considerations on interoperability to make registry interoperable and FAIR
Special attention will be dedicated to “education” on RD research with two interactive sessions on 1) how to fill the gaps and implement programs for researchers and young clinicians; 2) developing the RD e-learning scheme to align all actions.
Plenary and parallel Pillar sessions will provide inputs that would be used to finalize the EJP RD roadmap for 2021.
Please, have a look to the preliminary program of the meeting (the program will be regularly updated with more details on the content of each sessions, so do not hesitate to visit our site).
Members of all EJP RD participating institutions are invited to register here to take part at the EJP RD GA meeting and receive all necessary information to connect to the sessions.
Recorded webinar(s) will be freely available on the EJP RD website and on its official YouTube channel after the meeting to share good practices, relevant contents, and important support materials with the whole RD community.
Tune with us on twitter at the @EJPRareDiseases account and look at the EJP RD website to get the latest news from the EJP RD community.
Feel free to contact us at the firstname.lastname@example.org if you have any questions.
Related news items
Rob Aarnoutse is appointed as professor in Translation pharmacology of antimicrobial agents in particular drugs for tuberculosis25 January 2021
Hospital pharmacist and clinical pharmacologist Rob Aarnoutse is appointed as professor in ‘Translation pharmacology of antimicrobial agents, in particular drugs for tuberculosis’ at Radboud University / Radboudumc, starting 16 November 2020.read more
Oral health research makes significant impact at the 148th WHO Executive Board meeting25 January 2021
During the 148th session of the World Health Organization (WHO) Executive Board meeting, Member States passed a game-changing resolution on oral health. WHO Director General Dr Tedros Adhanom Ghebreyesus called it a “landmark resolution”.read more
Radboud Young Academy safeguards the future of science21 January 2021
New platform to provide advice on policy, create an interdisciplinary network of early career scientists, and promote career development.read more
Increase radio- and immunotherapy efficacy by targeting hypoxia21 January 2021
In a paper recently accepted by Clinical Cancer Research, Daan Boreel, together with Paul Span, Sandra Heskamp, Gosse Adema and Jan Bussink, reviews the therapeutic potential of decreasing the lack of oxygen (hypoxia) often found in solid tumors.read more
Radiation boost lowers risk of prostate cancer recurrence21 January 2021
An additional external-beam radiation dose delivered directly to the tumor can benefit the prospects of men with non-metastatic prostate cancer, without causing additional side effects. The risk of relapse within five years for these men is smaller than for men who did not receive this boost.read more
New research through grants for Radboudumc researchers14 January 2021
Several researchers at the Radboudumc have received grants to start new studies, including on rare diseases, liver disease and cancer metastases. These are grants from the Dutch Research Council, European Joint Programme on Rare Diseases and the Gastric Liver Disease Foundation.read more