2 September 2020

The EJP RD brings over 130 institutions (including all 24 ERNs) from 35 countries: 26 EU Member States, 7 associated, UK & Canada. The aim is to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation on rare diseases (RD) research by improving its integration and implementing efficient financial models to support it.

Radboudumc is a full partner of EJP RD project and thus ALL researchers and stakeholders belonging to it can profit from the proposed program and join the meeting.
 
This year the GA program is going to be very rich and tailored to the specific interests of RD community.
The participants will be joining several workshops focused on:
  • improving the understanding of ongoing EJP RD funding mechanisms to increase quality of their applications
  • strengthening the capacity building to develop their new findings towards clinical settings
  • training them in the use of systems to diagnose difficult RD cases with exome/genome data
  • introducing novel and innovative methodologies applied to RD clinical trials
  • explaining EJP RD considerations on interoperability to make registry interoperable and FAIR 
In addition, interactive sessions will take place to facilitate the acquisitions of practical skills, such as 1) guidance diagrams on GDPR research data, ethical use and legal interpretation of medical research; 2) access to relevant resources for research needs on the EJP RD Virtual Platform (VP).
Special attention will be dedicated to “education” on RD research with two interactive sessions on 1) how to fill the gaps and implement programs for researchers and young clinicians; 2) developing the RD e-learning scheme to align all actions.
 
Plenary and parallel Pillar sessions will provide inputs that would be used to finalize the EJP RD roadmap for 2021.
 
Please, have a look to the preliminary program of the meeting (the program will be regularly updated with more details on the content of each sessions, so do not hesitate to visit our site).
Members of all EJP RD participating institutions are invited to register here to take part at the EJP RD GA meeting and receive all necessary information to connect to the sessions.
 
Recorded webinar(s) will be freely available on the EJP RD website and on its official YouTube channel after the meeting to share good practices, relevant contents, and important support materials with the whole RD community.
 
Tune with us on twitter at the @EJPRareDiseases account and look at the EJP RD website to get the latest news from the EJP RD community.
 
Feel free to contact us at the gameeting2020@ejprd-project.eu  if you have any questions.
 

Related news items


Rob Aarnoutse is appointed as professor in Translation pharmacology of antimicrobial agents in particular drugs for tuberculosis

25 January 2021

Hospital pharmacist and clinical pharmacologist Rob Aarnoutse is appointed as professor in ‘Translation pharmacology of antimicrobial agents, in particular drugs for tuberculosis’ at Radboud University / Radboudumc, starting 16 November 2020.

read more

Oral health research makes significant impact at the 148th WHO Executive Board meeting

25 January 2021

During the 148th session of the World Health Organization (WHO) Executive Board meeting, Member States passed a game-changing resolution on oral health. WHO Director General Dr Tedros Adhanom Ghebreyesus called it a “landmark resolution”.

read more

Radboud Young Academy safeguards the future of science

21 January 2021

New platform to provide advice on policy, create an interdisciplinary network of early career scientists, and promote career development.

read more

Increase radio- and immunotherapy efficacy by targeting hypoxia

21 January 2021

In a paper recently accepted by Clinical Cancer Research, Daan Boreel, together with Paul Span, Sandra Heskamp, Gosse Adema and Jan Bussink, reviews the therapeutic potential of decreasing the lack of oxygen (hypoxia) often found in solid tumors.

read more

Radiation boost lowers risk of prostate cancer recurrence

21 January 2021

An additional external-beam radiation dose delivered directly to the tumor can benefit the prospects of men with non-metastatic prostate cancer, without causing additional side effects. The risk of relapse within five years for these men is smaller than for men who did not receive this boost.

read more

New research through grants for Radboudumc researchers

14 January 2021

Several researchers at the Radboudumc have received grants to start new studies, including on rare diseases, liver disease and cancer metastases. These are grants from the Dutch Research Council, European Joint Programme on Rare Diseases and the Gastric Liver Disease Foundation.

read more