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The Radboudumc has 39 acknowledged Centers of Expertise for Rare Diseases (ECRD). By combining knowledge and skills about the diseases in expertise centers, you can receive better and faster treatment.
Care for rare diseases 39 Centers of Clinical Expertise for Rare Diseases (ECRD).
Rare disorders are diseases and syndromes that occur in less than 1 in 2,000 people. A clinical expertise center for rare diseases is then the place to go. By combining knowledge and skills about the diseases in expertise centers, you can get better and faster treatment.
read moreCare for rare diseases 39 Centers of Clinical Expertise for Rare Diseases (ECRD).
Rare diseases are diseases and syndromes that occur in less than 1 in 2,000 people. A clinical expertise center for rare diseases is then the place to go. By combining knowledge and skills about the disorders in expertise centers, you can get better and faster treatment.
Centers of clinical expertise for rare diseases are acknowledged by the Ministry of Health, Welfare and Sport.In the Netherlands there are now about 350 expertise centers, usually in a University Medical Center (umc). The Radboudumc offers expertise care for patients with a rare disease, within 39 recognized expertise centers. An overview of all expertise centers in the Netherlands, can be found via the expertise finder.
Requesting expertise advice:
The patient's primary care practitioner can submit a request for an opinion to an Expertise Clinical Center for Rare Disorders (ECZA) at Radboudumc.
More information
European Reference Networks
European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialized treatment and a concentration of knowledge and resources. read more (in Dutch)International patients
Everything you need to know as a foreign patient. Especially if you are not insured through the Dutch health care law.
read moreEuropean cooperation in European Reference Networks (ERN).
Medical treatment abroad
As a resident of the European Union (EU)/ European Economic Area (EEA) Iceland, Liechtenstein or Norway with health insurance, you are entitled to medical treatment in any other country in the EU/EEA. For information on reimbursements, please contact your health insurance company.
read moreMedical treatment abroad
As a resident of the European Union (EU)/ European Economic Area (EEA) Iceland, Liechtenstein or Norway with health insurance, you are entitled to medical treatment in any other country in the EU/EEA. For information on reimbursements, please contact your health insurance company.
Relevant documents:
