Radboudumc is one of the leading partners in the new European Reference Network eUROGEN by participation in all 3 workstreams. This Network involved 29 Health care Providers (HCP) from 11 European Member States and is part of the European Health care innovation program for Rare diseases.
The ERN for rare and complex urogenital diseases and conditions (eUrogen) is comprised of 3 workstreams (WS). Focusing on diagnosis and treatment, 'ensuring continuity of care from childhood throughout life': WS1- rare uro-recto-genital congenital anomalies; WS2 - functional urogenital conditions requiring highly specialised surgery and WS3 - rare urogenital tumours. eUROGEN will improve diagnosis, create more equitable access to high quality treatment and care for patients with rare urogenital diseases and complex conditions needing highly specialised surgery. eUROGEN has worked with the European Association of Urology in close partnership with all national European urological societies. They have 3 broad WS to ensure that as many of our patients as possible can receive high quality specialist care from birth through to the end of life.
The RIHS and RIMLS researchers who are involved in this network are Wout Feitz, Nel Roeleveld, Iris van Rooij, Ivo de Blaauw, John Heesakkers, Hans Langenhuijsen, Hedi Claahsen, Marlies Cornelissen, Toin van Kuppevelt. Willeke Daamen and Egbert Oosterwijk, themes Reconstructive and regenerative medicine and Urological cancers.
Communication toolkit for ERN Members, ERN BoMS, national focal points and Commission Representations you can find here.
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