30 November 2018

The International aHUS Conference “The Dutch Approach”, organized by The Dutch Renal Patient Organization in close collobaration with the Radboudumc HUS expertise center was successfully being held on Friday 9 November in Nijmegen.

The attendees were a mix of clinicians and members of  aHUS patients organizations from all over the World (Canada, USA, UK, India, Roemenia, Germany, Spain, Russia, France). Speakers at this conference were the researchers of the CUREiHUS Research Group (pharmacist Rob ter Heine, nephrologist in training Caroline Duineveld, postdoc researcher TML Elena Volokhina, pediatric nephrologist Nicole van de Kar). As stated in the title “Dutch Approach”  the CUREiHUS researchers explained the Dutch national guideline for the treatment of aHUS and our unique Dutch strategy towards a restrictive, safe and effective use of the drug eculizumab in patients with atypical hemolytic uremic syndrome (aHUS).

A summary (english) of this symposium was provided by the International aHUS Global Alliance patient organization as well as an interview with the CUREiHUS researchers.

A podcast concerning the reimbursement eculizumab for aHUS in the Netherlands was recorded by the Dutch Renal Patient Organization. In this podcast Zorginstituut Nederland, clinicians from Radboudumc HUS expertise center as well as Dutch Renal Patient Organization were interviewed about the reimbursement procedure of eculizumab.
 
Photo: Members of the International aHUS patient organizations,10 November 2018, Nijmegen
 

Related news items


The Postdoctoral Networking Tour in artificial intelligence

2 July 2020

You are a postdoctoral researcher in the field of artificial intelligence? The Postdoc-NeT-AI offers you the opportunity to participate in one week of on-site visits to leading German universities, research institutes and companies. Apply now to this year's tour until 16 August 2020.

read more

Register for Phd courses via gROW What does this mean for you?

2 July 2020

From now on you can arrange everything related to the general RU PhD courses via gROW. Because of this there will be some changes in the registration! What does this mean for you?

read more

Experts on metabolic diseases still an unknown major problem...

1 July 2020

Six Dutch UMCs and a patient association contribute to treating and solving this major, often unknown, problem. Timely detection of metabolic diseases is vital. Therefore, Radboudumc is also part of the consortium “United for Metabolic Diseases”.

read more

Radboud Pluim for Lionne Ekers ambassador for the RIMLS institute

30 June 2020

Lionne Ekers received the Radboudpluim for her special merits for the Radboudumc. She is a born ambassador for our Institute.

read more

Trained immunity: a tool for reducing susceptibility to and the severity of SARS-CoV-2 infection

29 June 2020

In a review in Cell Mihai Netea, Frank van de Veerdonk, Reinout van Crevel and Jorge Dominguez Andres propose that induction of trained immunity by whole-microorganism vaccines may represent an important tool for reducing susceptibility to and severity of SARS-CoV-2.

read more

“In the lead of your PhD” in COVID times

25 June 2020

Starting your PhD during the lockdown, working from home, not knowing your colleagues, but finally they could share their stories during the first 1.5 meter course.

read more