We aim to develop a theoretical, interdisciplinary model for meaningful and ethical end of life care that addresses current societal challenges.
For this, we have specified the following sub-aims:
- We examine the lived experiences of serious illness and dying from the perspectives of patients, caregivers, and healthcare professionals.
- We aim to investigate how these experiences are shaped by socio-cultural norms, behaviors, and systems.
- We aim to clarify the complexities of transmural patient journeys, particularly for those with multi-morbidity, dementia, or disadvantaged or minority backgrounds.
- We aim to identify and address key medical ethical dilemmas, and implement ways to appropriately deal with them and foster our moral discernment.
- We aim to create an evidence-based framework to guide improvements in end of life healthcare.
- We aim to foster (inter)national ethical health and end-of-life policies that can guide us, now and in the future, to distribute care and resources in a meaningful, inclusive and fair way, in the midst of the emerging societal challenges.