Centers of clinical expertise Centers of clinical expertise for rare diseases

What are centers of expertise for rare diseases

Centers of clinical expertise for rare diseases are acknowledged by the Ministry of Health, Welfare and Sport.

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What are centers of expertise for rare diseases

Centers of clinical expertise for rare diseases are acknowledged by the Ministry of Health, Welfare and Sport. A broad range of criteria are used in the assessment of 288 potential centers of expertise. There are 17 European criteria with regards to 7 different themes. Guidelines, care paths, standards and indicators are all of influence. There is a clear focus on scientific research. The continuity of care is also an important factor.

Being granted the status of center of expertise for rare diseases is a major step towards better integrated care for patients with rare diseases that affects 6 to 8% of the population.

Centers of clinical expertise for rare diseases

See our nationally acknowledged centers of clinical expertise for rare diseases. see overview

European Reference Networks

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialized treatment and a concentration of knowledge and resources. read more (in Dutch)