6 December 2018

The minister for medical care and sport, Bruno Bruins, sent his recommendation regarding the use of big data in healthcare to the House of Representatives on 15 November. “Data has to be stored securely, but information has to flow where it is needed or wanted.” In order to securely share data, the Personal Health Train project was established. Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders.

The application of big data is becoming more and more important in healthcare. The problem is that hospitals, researchers, and patients all collect data in their own systems. This makes exchanging and combining information difficult. To solve this problem, the FAIR data principles were launched in 2016. Organizations that follow these principles collect healthcare data that can be retrieved and that is open, uniform, and reusable. This standardization makes it easier to combine data.
The Personal Health Train project was established to enable the combining of data on a technical level. The basic principle for this is that the data stays with the party who collected it (“stations”) and that the “health trains” transport analyses and results between the data stations without taking the data itself.

Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders of Personal Health Train: “The point is to make the individual citizen the center of sharing information. This is not only relevant for research, but also for care. We will create the technical tools with Personal Health Train. The minister is responsible for the legal frameworks around it. That he has now taken it on is an impulse for us to keep going.”
See also:
  • Want to know more about these subjects? Click on the buttons below for more news.


Related news items

Large NWA ORC grant awarded for national skin research: Next Generation ImmunoDermatology

23 March 2022 Research for better treatment methods for chronic skin diseases. read more

Metakids-UMD grant for Purva Kulkarni

18 June 2020 The Metakids foundation has awarded 220.575 Euro to support the establishment of a multi-omics biomarker platform within the United for Metabolic Disease (UMD) consortium. read more

UMCs work together on the FAIRification of patient registries

4 June 2020 It has become easier for scientists working with rare diseases to exchange research data. By researchers from Radboudumc and Amsterdam UMC, a rare disease registry codebook has been created. The codebook facilitates data exchange between institutions with different electronic data capture software. read more

The new front line: big data podcast

22 May 2020 What role do big data and technology play in the fight against corona? What data can help save lives? How do you ensure that your personal health data is used safely? Among others, Peter-Bram 't Hoen explains. read more

MetaDome highly accessed

7 May 2020 MetaDome was recently recognized as one of the most accessed articles of 2018-2019 in Human Mutation. The MetaDome was a project developed by Laurens van de Wiel, Christian Gilissen, and Gert Vriend. read more

Towards molecular therapies for Myotonic Dystrophy

1 October 2019 ReCognitION, a new 1.3 M€ European project under the leadership of Peter-Bram ‘t Hoen, Baziel van Engelen and Jeffrey Glennon, was kicked-off in Gent. read more