The minister for medical care and sport, Bruno Bruins, sent his recommendation regarding the use of big data in healthcare to the House of Representatives on 15 November. “Data has to be stored securely, but information has to flow where it is needed or wanted.” In order to securely share data, the Personal Health Train project was established. Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders.The application of big data is becoming more and more important in healthcare. The problem is that hospitals, researchers, and patients all collect data in their own systems. This makes exchanging and combining information difficult. To solve this problem, the FAIR data principles were launched in 2016. Organizations that follow these principles collect healthcare data that can be retrieved and that is open, uniform, and reusable. This standardization makes it easier to combine data.
The Personal Health Train project was established to enable the combining of data on a technical level. The basic principle for this is that the data stays with the party who collected it (“stations”) and that the “health trains” transport analyses and results between the data stations without taking the data itself.
Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders of Personal Health Train: “The point is to make the individual citizen the center of sharing information. This is not only relevant for research, but also for care. We will create the technical tools with Personal Health Train. The minister is responsible for the legal frameworks around it. That he has now taken it on is an impulse for us to keep going.”
Related news items
Prinses Beatrix Spierfonds grant to investigate patient stratification in myotonic dystrophy24 January 2020
Rick Wansink and Roland Brock, both theme Nanomedicine, received a € 280,000 grant from the Prinses Beatrix Spierfonds.read more
RIMLS PhD retreat registration is open23 January 2020
Yearly, RIMLS PhD candidates gather for the two-day PhD Retreat. Apart from the science, this event is highly valued for the opportunity to meet and get to know fellow PhD candidates during the social activities. Early bird registration and abstract submission deadline: 4 March 2020.read more
NWO Open Competition Domain Science - XS grant for Ronald van Rij and Jenny van der Wijst21 January 2020
NWO Domain Science has awarded Ronald van Rij, theme Infectious diseases and global health and Jennny van der Wijst, theme Renal disorders an XS grant. The XS category emphatically strives to encourage curiosity-driven and bold research involving a relatively quick analysis of a promising idea.read more
RIMLS award ceremony proudly presenting the winners16 January 2020
Several RIMLS researchers received an award and bonus during the New Year's drinks. See all photo's and the ENABLE aftermovie.read more
Stofwisselkracht grant for Daan Panneman and Richard Rodenburg16 January 2020
Daan Panneman & Richard Rodenburg have been awarded a Stofwisselkracht grant for their proposal “CRISPR/Cas9 knock-in complementation in fibroblasts of mitochondrial disease patients”. Together with Omar Tutakhel & Jan Smeitink they will investigate the possibility of using CRISPR/Cas9 knock-in.read more
Radboud Talks 2020 scientific pitch competition14 January 2020
The next edition of Radboud Talks will take place in the spring. During this academic pitch competition, young researchers will be given the opportunity to share their stories with a large audience. In a three-minute presentation, you will talk about your research in a fun and accessible manner.read more