6 December 2018

The minister for medical care and sport, Bruno Bruins, sent his recommendation regarding the use of big data in healthcare to the House of Representatives on 15 November. “Data has to be stored securely, but information has to flow where it is needed or wanted.” In order to securely share data, the Personal Health Train project was established. Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders.

The application of big data is becoming more and more important in healthcare. The problem is that hospitals, researchers, and patients all collect data in their own systems. This makes exchanging and combining information difficult. To solve this problem, the FAIR data principles were launched in 2016. Organizations that follow these principles collect healthcare data that can be retrieved and that is open, uniform, and reusable. This standardization makes it easier to combine data.
The Personal Health Train project was established to enable the combining of data on a technical level. The basic principle for this is that the data stays with the party who collected it (“stations”) and that the “health trains” transport analyses and results between the data stations without taking the data itself.

Peter-Bram ‘t Hoen, theme Nanomedicine, is one of the project leaders of Personal Health Train: “The point is to make the individual citizen the center of sharing information. This is not only relevant for research, but also for care. We will create the technical tools with Personal Health Train. The minister is responsible for the legal frameworks around it. That he has now taken it on is an impulse for us to keep going.”
See also:

Related news items

4,8 million euros for prevention of tuberculosis among people with diabetes in Africa

16 July 2019

Reinout van Crevel and Lindsey te Brake have received European funding of 4.8 million euros to lead an international consortium to screen thousands of people with diabetes in Uganda and Tanzania for TB, and investigate the effect and costs of 3 months preventive treatment for TB.

read more

50.000 grant for Paul de Jonge and Harry Dolstra

15 July 2019

Paul de Jonge and Harry Dolstra, theme Cancer development and immune defense, received a €50.000,- (NWA-IDG) grant for their project regarding cancer immunotherapy.

read more

Handbook of biomarkers and precision medicine a new publication by Alain van Gool

12 July 2019

Alain van Gool published a new handbook on biomarkers and applications in (pre)clinical drug development for precision medicine.

read more

Successful Summer School by CMBI, TML and Human Genetics

8 July 2019

CMBI, TML and Human Genetics organized a successful Summer School on 'Integrative X-omics Analyses Empowering Personalized Healthcare'.

read more

Summer greetings from René Bindels

5 July 2019

In this last newsletter before the summer break and before I wish you all a happy holiday, I would like to briefly summarize the first half of 2019 and especially look ahead to the interesting activities that will take place in the second half of the year.

read more

Prostate cancer theranostics imaging, surgical guidance, and targeted photodynamic therapy

5 July 2019

In Theranostics, Mark Rijpkema and colleagues present the development of a novel multimodal tracer that targets both preoperative imaging, surgical guidance, and targeted photodynamic therapy of PSMA-expressing prostate cancer.

read more