11 November 2020

Making data FAIR is a frequent requirement in research projects. But FAIR data is not a goal in itself. It is the path to knowledge discovery, data integration, and reuse by the community.

Below animation, made by Bruna Dos Santos Vieira and published at the International Society for the Study of Vascular Anomalies, features one of our Vascular anomalies experts finding a suitable treatment for a patient only because of the FAIR data principles. Please note it is about a fictional medical case where the real FAIR methodology and benefits are highlighted.

Radboudumc is involved in several projects that implement FAIR data infrastructure and promote better data stewardship, for example, the European Joint Programme on Rare Diseases, the European Reference Networks for rare disease registry projects, and ZonMW sponsored COVID-19 research projects. This work is encouraged by the EU and partners in the Netherlands. Some of these partners are HealthRI, the NFU, GO-FAIR, and the Dutch Techcentre for Life Sciences.

Soon we will be able to showcase real life FAIR results. Leo Schultze Kool and his team are actually implementing the FAIR Registry of Vascular Anomalies here at our hospital. Radboudumc is one of the specialized health care providers from VASCERN, an European Reference Network created to improve rare disease patients treatment, diagnosis and care pathway.

Related news items


TropIQ seeks new mosquito repellents

21 September 2021

TropIQ Health Sciences, a Radboudumc spin-off, has received a 1.3 million USD grant from the Bill & Melinda Gates Foundation to track down new mosquito repellents.

read more

New start-up Patholyt will bring AI research into pathology diagnostics

21 September 2021

Patholyt is on a mission to accelerate the adoption of artificial intelligence in pathology diagnostics and improve the chances of cancer patients worldwide. Patholyt is a spin-off from Radboudumc, a frontrunner in computational pathology research.

read more

Treatment of most common skin cancer can sometimes wait

20 September 2021

Not treating but keeping an eye on the cancer is also an option

read more

Donor limbs last longer thanks to improved preservation technology

17 September 2021

Research by Anne Sophie supported Maartje's double hand transplantation

read more

Young Radboudumc researchers receive grant to engage in bio-medical and health research that is off the beaten path

16 September 2021

The ZonMw Off Road program is once again giving young scientists the opportunity to conduct innovative research in medical and/or health care. This research is off the beaten track and aims to bring about new insights and unexpected breakthroughs for healthcare and healthcare innovation.

read more

Infections increase risk to develop dementia

16 September 2021

In a recently published study, Radboudumc researchers investigated the effects of infectious events on cognitive decline and the development of dementia and its possible structural underpinning using pre- and post-infection MRI of the brain.

read more