Wikimedia Commons The Radboud Biobank has added a new sub-biobank to the collection: the Haemophilia Pearl which is part of the Parelsnoer InstituteThe Radboud Biobank has added a new sub-biobank to the collection: the Haemophilia Pearl which is part of the Parelsnoer Institute.The Haemophilia Pearl aims to improve the standard of haemophilia care by collecting and storing clinical data and biospecimens from Dutch haemophilia patients for future research purposes. The biospecimens and clinical data can be used to evaluate diagnostics and treatment methods and assess factors that can predict or modify the clinical course of the disease. Data and biospecimens for the Haemophilia Pearl will also be collected during the Haemophilia in The Netherlands-6 (HiN-6) project. All Dutch Haemophilia treatment centres and the Dutch Haemophilia Patient Society take part in the Haemophilia Pearl.
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