About the Radboudumc center of expertiseThe Hemophilia Treatment Center (HTC) is part of Radboudumc and Amalia Children’s Hospital and one of the specialized treatment center for patients with hemophilia and other congenital hemostatic disorders in the Netherlands. Together with the Maxima Medical Center (Eindhoven, Veldhoven) and Maastricht UMC, Raboudumc’s HTC forms the overarching HTC NEM.
What does the HTC do?The HTC counsels and treats adults and children with hemophilia and related hemostatic disorders.
Special consulting hoursThe HTC has coagulation consultations in which you or your child has an appointment with an internist-hematologist or the pediatric hematologist and a hemophilia nurse or nursing specialist. We draw up a personal treatment plan for each patient. Based on the severity of the coagulation disorder, judged by the number of hemorrhages and the intensity of the treatment, we will determine how often you will be invited to attend the HTC consultations. Usually, this is once or twice a year.
Multidisciplinary teamIn addition to the hemophilia physician, the nursing specialist and the hemophilia nurse, the HTC also includes specialists from other coagulation disorders expertise. Examples of these areas of expertise are orthopedics, physiotherapy, rehabilitation medicine and social work. Together we will, if necessary, ensure a broad approach to the treatment and counseling for you and/or your child. This counseling can be about medical matters, but also about your work, home situation, sports, and school. Your hemophilia practitioner or the nursing advisor will arrange an appointment with the specific care giver..
DiseasesWe have an expertice in the following hemostatic disorders:
- Hemophilia A and B
- Disease of von Willebrand
- Fibrinogen and the factors, II, V, VII, X, XI, XII or XIII deficiency
Making an appointmentYour general practitioner or medical specialist will refer you to our center of expertise. You will then be sent information about our outpatient clinic and the date and time of your appointment.
Individual treatmentWe will draw up a personalized treatment plan for you or your child, a copy of which will we also send to you. This treatment plan states the coagulation disorder, the required medication and the needed dosage of this medication. It also indicates which treatment is necessary in the event of hemorrhages, trauma or surgery. It also records all agreements regarding your or your child’s treatment. All care providers involved in the treatment can view this treatment plan via the electronic patient file. Via the myRadboud digital secure environment, you can also consult your medical record yourself. Ask the secretary's office for more information.
Patient organizationsThe Dutch Association of Hemophilia Patients (NVHP) is a patient organization for people with hemophilia and anticoagulant disorders. For more information go to the NVHP website.
Hemophilia Platform Nijmegen
The Hemophilia Platform Nijmegen consists of a group of patients who are being treated in our center of expertise.
Ordering hemostaticTo order your hemostatic products, you can contact the Radboudumc Pharmacy. The pharmacy is open seven days a week, always has your products in stock and could also have them delivered to your home. Together you can decide whether you will keep an eye on making sure you have enough medication at home or whether they will help you. In the latter case, they will contact you periodically to ask you how much medicine you still have.
Further trainingThe center of expertise contributes to the further training and education of medical specialists, general practitioners, and nurses. For more information about this, please contact Ms. T. de Col (secretariat).
ResearchAs much as possible, consensus protocols are used to define treatments for hematological disorders. To further improve treatments, we conduct scientific research. You may be asked to participate. Read more about the different types of scientific research.
Trial office Hematology - Medical Oncology
The Trial Office supports researchers and specialists from the departments of Hematology and Medical Oncology in setting up and carrying out clinical scientific research.