National registrations

Around certain diseases, national registrations have arisen. Hospitals supply patient data and patient experiences to these registrations. The purpose of the registrations is to gain knowledge about certain illnesses and diseases and their treatment and evolution – and by doing so improving the quality of healthcare. Radboudumc also contributes to the national registrations. Examples of national registrations are the national cancer registration and the PALGA (pathology) registration. If possible, the data are processed anonymously. In some cases, it has to be done nominative or coded. To protect the patients’ privacy, agreements have been made with the registrations. 

About privacy

Radboudumc is obliged to capture all patient data that are necessary for your treatment in a file; images too. Your data may not be used randomly, for you do have a right to protection of your privacy. You can consult the privacy rules at the Information Center.

more about the Information Center

Social media

You are, of course, free to share your thoughts and feelings about Radboudumc via social media. But online sharing of any photos or videos you made in Radboudumc is prohibited.

read more

Social media

You are, of course, free to share your thoughts and feelings about Radboudumc via social media. But online sharing of any photos or videos you made in Radboudumc is prohibited. You always have to ask permission from the person you want to film or photograph. Act in a respectful way in case someone asks to remove any material you have placed online. Please be aware of the nature of social media: everything you post online is (and will stay) visible and findable. Do not post anything on social media that can harm yourself, other patients or staff members of Radboudumc. 

Photographs, films and sounds recordings

You always have to ask permission from people you want to photograph, film or record. Tell them what the purpose of your recording is and what you are planning to do with a photograph, film or sounds record.

read more

Photographs, films and sounds recordings

Always respect other people’s privacy if you want to photograph, film, or record patients or staff members. You always have to ask permission from people you want to photograph, film or record. Tell people what the purpose of your recording is and what you are planning to do with a photograph, film or sounds record. For external publication of image and/or sound, you need the written permission of our Communications department. If someone refuses or is unable to give permission, you are not allowed to photograph or record that person. Also, photographing or filming children is prohibited.

Recording a consult with your doctor

You may record your consult with a healthcare provider to be able to listen to it again later on. But when you do, we expect you to: 
  • discuss this with your healthcare provider beforehand and ask him or her for permission. If the healthcare provider refuses, he or she is obliged to provide you with written information. 
  • use the records exclusively for personal purposes. Revealing any recordings (including on social media) is only possible with the explicit permission of the healthcare provider.

Security cameras

Several safety camera’s are located at different places at Radboudumc, watching over your safety and belongings. Signs indicate where these camera’s are located. The records are kept only for a very short time, unless an incident occurs that requires investigation.

Photos and film in the context of your treatment

Sometimes, a healthcare provider makes photographs or films as part of your treatment. These are kept in your personal medical file.

read more

Photos and film in the context of your treatment

Sometimes, a healthcare provider makes photographs or films as part of your treatment. These are kept in your personal medical file. The healthcare provider will ask your permission to make records, because it concerns a treatment. If you do have an objection to photo’s or film material being made, please indicate this.

In case we want to use your photo’s or films for educational or quality purposes, we are obliged to ask you for permission in advance and to explain what we want to use them for and how long we would keep them. You yourself decide whether you want your material to be used or not, and you can always revoke your permission later on.

Changing, adding or destroying information in your file

Do you think certain data in your file are incorrect, incomplete, irrelevant or contrary to a statutory regulation? Then you can ask your healthcare provider to correct these data.

read more

Changing, adding or destroying information in your file

Do you think that certain data in your file are incorrect, incomplete, irrelevant or contrary to a statutory regulation? Then you can ask your healthcare provider to correct these data. You also have the possibility to request for (part of) your data to be destroyed. When this is done, your request for destruction is kept in the (otherwise empty) dossier. A healthcare provider is not obligated to grant your request for destruction, for example if maintaining the file is important for someone else of if destroying the file is contrary to a statutory regulation. When the healthcare provider refuses your request, he or she must give an explanation why.

You can also write down your personal vision on the treatment in a declaration. If you do so, your healthcare provider adds this file to your dossier.

A request for destruction or addition of data should be send to the Board of Directors or to your own doctor.

Retention period of the file

We never keep a medical file longer than necessary. The general retention period is 15 years, starting from the last moment of contact between patient and hospital.

read more

Retention period of the file

We never keep a medical file longer than necessary. The general retention period is 15 years, starting from the last moment of contact between patient and hospital. Sometimes the retention period is extended,  for example in case of long-term or regular treatment.

Some data in academic hospitals are subject to the Public Records Act (Archiefwet). For instance, documents like surgery reports and resignations must be kept for 115 years.

A minimal retention period of 5 years applies to involuntarily hospitalized psychiatric patients. For psychiatric patients who are hospitalized voluntarily, the regular retention period applies.

You can ask your healthcare provider to keep your data for longer than the statutory period. This can be of importance in case of genetic disorders or legal proceedings.

Usage of personal data


Within Radboudumc

All healthcare providers involved in your treatment may consult your medical file if this is necessary for your treatment.

read more

Within Radboudumc

All healthcare providers involved in your treatment may consult your medical file if this is necessary for your treatment. Other employees, too(for example administrative staff members), have access to your details. But they can only consult the part of your data that is necessary for their function. We do not have to ask your permission for this. Radboudumc also uses your data to support patient care, statistics and management purposes (for instance the financial administration). 

Radboudumc is obliged to monitor and improve the quality of care. In order to do so, we have a large number of quality systems. For these, we make use of your data. We keep the data anonymous (without a name) as much as possible.

In case you file a complaint, you agree with the mediators and/or the members of the complaints committee to consult your file. Do you not want this? Then please indicate this clearly when you file your complaint. The mediator and the members of the complaints committee do have a duty of confidentiality in the handling of complaints.

Usage of your medical data and body material

In some cases, we can use your medical data or body material for scientific research or education.

read more

National registrations

There are many (national) registrations in which (research)data and patient experiences are documented.

read more
login