Research Themes Rare cancers

Rare cancers About theme

Due to their low frequency, rare cancers pose particular challenges. Our mission therefore is to improve diagnosis and prognosis and to perform personalized clinical studies and translational bench-to-bedside research in patients with rare cancers.

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Rare cancers About theme

More than 4 million people in the European Union are affected by rare cancers. Despite the rarity of each of these 186 cancers, they represent a total of about 22% of all cancer cases. This is more than any single common cancer. Rare cancers are identified as those with an incidence of less than 6 per 100,000 persons per year and include head and neck cancer, sarcoma, thyroid cancer, neuro-endocrine cancer, brain tumors, lymphoma and pediatric cancer. Unfortunately, the average outcome for patients with rare cancers is inferior to those with more common cancers.
 
Due to their low frequency, rare cancers pose particular challenges. Our mission therefore is to improve diagnosis and prognosis and to perform personalized clinical studies and translational bench-to-bedside research in patients with rare cancers. This will be performed in relationship with patient advocacy groups, if applicable. Given the rarity of these tumors, collaboration with national and international centers and partners is vital for the success of this theme.

Objectives

  • We aim to remedy late or incorrect diagnosis records.
  • We aim to improve access to appropriate therapies and clinical expertise.
  • We will raise the number of clinical trials in spite of the small number of patients.
  • We will endeavor to raise market interests in the development of new therapies.
  • We will seek to improve the number of available registries and tissue banks.

Theme leader

Carla van Herpen MD PhD
associate professor

+31 (0)24 368 66 23

send an email

Societal impact

More information will follow soon.

News and agenda

Organisation


Researchers Rare cancers

See the researchers related to this theme.

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Answers in Dutch

Information on our research can also be found in Dutch on the Nationale Wetenschapsagenda website. The information here answers questions asked by Dutch citizens.

Research group leaders

Affiliated institutes and centers

Radboud Institute for Health Sciences

Ideally, every procedure in clinical practice and public health should take place based on proof, instead of intuition or 'experience'. Our aim is to improve clinical practice and public health. read more

Radboud Institute for Molecular Life Sciences

Our main aim is to achieve a greater understanding of the molecular mechanisms of disease. By integrating fundamental and clinical research, we obtain multifaceted knowledge of (patho)physiological processes. read more
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