News Biobank

Framework for standards and assessment of accessing identifiable patient data for medical scientific research

A Framework for standards and assessment of accessing identifiable patient data for medical scientific research has been developed in the Radboudumc.

Animation Radboud Biobank for patients

The Radboud Biobank has had an animation made to inform Radboudumc visitors about the Radboud Biobank and its purpose.

HEALTH-RI Biobank Community

Biobanks are an indispensable part of the infrastructure for health research. That is why BBMRI.nl, Parelsnoer and Health-RI are joining forces.

RICH sub-biobank

Spontaneous intracerebral hematomas (ICH) are the most deadly form of stroke. The RICH biobank collects biomaterial (DNA, plasma, serum and PAXgene) from patients with spontaneous ICH.

SHM sub-biobank

Stichting HIV Monitoring’s (SHM) mission is to increase knowledge and understanding of all relevant aspects of HIV infection.

REGenG sub-biobank

The Radboud Expertise Center Sex & Gender (REG & G) is responsible for patient care, education, and research regarding gender incongruity / dysphoria.

Review of the Code of Conduct for Health Research

A public review of the full draft Code of Conduct is expected to occur in early 2021.

Assessment of research with material from an existing biobank.

If you want to perform research with material from a biobank and the initiation of this biobank has already been approved by the CMO Radboudumc, you only need to submit an application to the CMO Radboudumc for assessment in certain cases.

Sub-biobank MEMORY

The MEMORY biobank focuses on research into biomarkers for memory impairment and dementia and their validation in clinical cohorts.

RYR1 sub-biobank

The RYR1 biobank is part of a study of the neuromuscular and multisystem features of patients with malignant hyperthermia or rhabdomyolysis related to RYR1 (ryanodine receptor type 1) variants.

Sub-biobank CDG Congenital Disorders of Glycosylation

ProBCI sub-biobank

There is a pressing need for predictive biomarkers to personalize bladder cancer treatment.

New colleague

My name is Robbert Croes and I started mid 2020 as a data-scientist at the Radboud Biobank.

Financial regulation for sub-biobanks

Sub-biobanks are not required to pay up-front for the processing and storage of biomaterials. The effectiveness of this pre-financing agreement however is dependent on adherence to the demands regarding delivery and processing according to the Radboud Biobank standard operating procedures.

Biobanking: the power of collecting

Urine, cerebrospinal fluid, blood. Everything is stored in Dutch biobanks. Collecting this takes a lot of time and money. Is it worth that? What does it yield?

Costs for internal researchers in case of request for samples

As of January 1, 2020, internal researchers who request samples from the Radboud Biobank will only be charged for the number of samples received.

New sub-biobanks

The Radboud Biobank has added one new sub-biobank to the collection: HEMLYM.

Biobank OPMD

In oculopharyngeal muscular dystrophy (OPMD), muscle strength slowly decreases due to a breakdown of muscle cells. The Biobank OPMD contains clinical data and residual biomaterial.

Biobank BVO

The Biobank BVO contains left-over cytological material from the cervical screening program. The ambition of the BVO Biobank is to make this residual material available for scientific research.

BBMRI-NL series on sustainable biobanking

BBMRI-NL has made a series on sustainable biobanking, combining current knowledge from literature, workshops, and focus groups.

Pilot Broad Consent at the Gate

In line with the NFU initiative “Broad Consent at the Gate” (Breed Consent aan de Poort), the Radboud Biobank is currently conducting a feasibility study examining consent procedures for the use of residual material for scientific research.

COREON and the Dutch Code of Conduct on data protection in health research

COREON is currently revising the Dutch Code of Conduct for data protection in health research.

Biobank information for patients on the Radboudumc website

There is patient information available about biobanking in Dutch.

Information letter and consent form - new template available

The Radboud Biobank has drafted a template for the Information letter and consent form.

Nijmegen Bladder Cancer Study (NBCS)

The aim of NBCS is to investigate lifestyle factors and genetic factors in relation to the risk of bladder cancer, the course of the disease, and the effect of therapy.

FUTURE Biobank

The “Follow-Up of Transient ischemic attack and stroke patients and Unelucidated Risk factor Evaluation” (FUTURE) study is a prospective cohort study of prognosis of stroke in young adults.

Nijmegen Four Day March Cohort

Participants in the Nijmegen Four Days Marches are asked annually to complete an online questionnaire.

AortaBank

The ambition of AortaBank is to store biomaterial and associated clinical data of all patients who undergo operations on the Aorta(valve).

Visibility of the Radboud Biobank

It is essential to have a complete and up-to-date list of publications where the Radboud Biobank has provided source material and data.

PhD defense Martin Boeckhout “The Ethics and Governance of Health Research Infrastructure"

New biomedical innovations offer the promise of personalised medicine and health. Getting there requires huge amounts of sensitive personal health and care data.

Opt-out versus Opt-In Consent for Residual Samples

The Radboud Biobank will be conducting a 6-month feasibility study, as proposed by the Netherlands Federation of University Medical Centers (NFU), to evaluate the impact of migrating to a opt-in method, which requires explicit consent from the patient for use of the residual material.

Biobanking with invasive procedures - new Radboudumc policy

Recently, the CMO-light decided to allow invasive procedures for biobanking under strict conditions.

Healthy Brain Cohort

The goal of the Healthy Brain Cohort is to undertake an innovative approach to understand the human brain by examining the brain’s integration, individuality and dynamics.

Sub-biobank Adrenal Gland Diseases

The Biobank Adrenal Gland Diseases propels scientific research into diagnostic and prognostic markers

New sub-biobanks

Annual report 2018

The Radboud Biobank recently published it's 2018 annual report.

Sub-biobank Coronary Microvascular Dysfunction

Sub-biobank Genetics and Rare Diseases

Sub-biobank Pain Genetics

Sub-biobank Sarcoma

The PREGBank

Informed Consent building blocks for sub-biobanks in Epic

Introduction:

A new face at the Radboud Biobank!

Need a transfer agreement for external partners? For the transfer of biomaterial and/or data to an external partner a material and data transfer agreement (MTA/DTA) must be used.

For the transfer of biomaterial and/or data to an external partner a material and data transfer agreement (MTA/DTA) must be used.

Policy regarding the financing of new biomaterials

All initial costs related to patient sampling and the collection of biomaterials are covered by individual academic departments. Read more about the costs covered by the Radboud Biobank.

Amount of DNA upon request

Upon request of DNA an applicant must indicate how many μgs of DNA is needed.

Radboud Biobank Oncology

The Radboud Center for Oncology is initiating the Radboud Biobank Oncology in the Radboudumc. This oncology biobank will be part of the Radboud Biobank.

Website for patients about biobanking

In October a new website was published for patients

Europe Biobank Week

Radboud Biobank employees actively follow developments and trends by other biobanks both nationally and internationally.